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The first few days home from the hospital were overwhelming until we figured out a routine. Our daughter was put on a sliding scale for her insulin(Novolog). She had to take 1 unit of insulin for every 15 grams of carbs that she would eat, plus any additional insulin when she needed to correct her blood sugar if it was too high.
Among the many things she was sent home with, The Calorie King book was now her bible. Any food you could imagine is in that book. It even includes restaurants for when dining out. Counting her carbs has been so easy because of this book.
At her one month check up, her blood sugars were still high even though she was taking the right amount of insulin for everything she ate and when she needed to correct any highs she had. Her Dr. decided to put her on Lantis, a 24-hour acting insulin, 5 units every night at bed time.
Over the next few years, the amount of Novolog she needed to take, changed every single time we went in for her 3 month checkups because her A1C was always high. A1C is what her blood sugars for the past 3 months. She went from taking 1 unit of insulin for every 15 carbs down to 12 carbs, 10 carbs, 8 carbs, 6 carbs. It was getting to the point where she couldn't eat anything at all without taking insulin. Protein is free for her, which means she doesn't need to take insulin for meat, eggs, nuts, anything high in protein.
They also upped her units of Lantis from 5 units at night to 10 then to 15. She started complaining that the Lantis was burning when she would inject it. We even made sure to alternate the injection sites so scar tissue wouldn't build up. If scar tissue builds up and insulin is continued to be injected in the same spot, the insulin just sits there instead of making its way to the pancreas.
My motherly instinct starting kicking in and it was kicking hard! Something was wrong. I just knew it. It's been a few years now since she's been diagnosed and all these changes and her blood sugars were still high. So I researched the best Endocrinologists around us. I made an appointment and waited for that day to come.
I felt helpless, I didn't know what to do to help her get her blood sugars on track. I was there every time she took insulin. She was independent and wanted to do everything herself but I double checked everything before she took her shots. Something wasn't right and I couldn't wait for the day of that appointment. It felt like the longest wait of our lives.